We have hundreds of market research studies open for patients and caregivers. A few of the studies we are working to fill immediately are listed below.
If you are already a member of Rare Patient Voice and want to be considered for a patient-centric study listed below, please contact study.inquiries@rarepatientvoice.com
If you are NOT a member and are looking for study volunteer opportunities, please complete this sign-up process and include all medical conditions to be considered for one or more of the rare disease research studies listed below and any other similar studies.
Feel free to also share this page with friends or family who may be interested in participating in rare disease studies.
United States
Achondroplasia adolescent patients and caregivers United States
This is a 5-minute survey for a medical history platform.
Alopecia Areata (AA) patients or caregivers United States
20-minute online survey, compensation is $40
Bladder Cancer patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120
Breast Cancer patients United States
25-minute online survey, compensation is $50
Cancer African American or Hispanic patients or caregivers in the Seattle, WA area United States
3-hour in-person interview or possible 90-minute zoom interview, compensation is $275 for the in-person interview/$150 for the zoom interview
Cancer: Waldenstrom's Macroglobulinemia (WM), Ovarian Cancer, Fallopian Tube Cancer, Primary Peritoneal Cancer (PPC), Urothelial Carcinoma (Bladder Cancer, aka-Transitional Cell Carcinoma-(TCC)) patients and caregivers United States
20-minute online survey, compensation is $40
Catheter User patients in the Philadelphia, PA area United States
90-minute in-person interview, compensation is $270
Chronic Myeloid (Myelogenous) Leukemia patients United States
30-minute online survey, compensation is $60
Chronic Urticaria patients United States
90-minute web-assisted phone interview (WATI) + COD (confirmation of diagnosis), $175 (interview) and $75 (POC-proof of confirmation)
Congenital Adrenal Hyperplasia (CAH) patients United States
This is a 5-minute survey for a medical history platform, compensation is a $25 gift card
Crohn's Disease Male Non-Caucasian Patients United States
90-minute web-assisted phone interview, compensation is $175 ($150 for the interview and $25 for confirmation of diagnosis)
Depression patients with experience with Rexulti (Brexpiprazole) or Vraylar (Cariprazine) United States
75-minute web-assisted phone interview plus a pretask app to download, compensation is $300 ($150 for the interview and $150 for the pretask app)
Eosinophilic Esophagitis (EOE) patients or caregivers United States
20-minute online survey, compensation is $40
Epilepsy: Infantile Spasms (IS) or Tuberous Sclerosis (TSC) Caregivers of children ages 0-8 who have used the following medications within the last 4 years on a child: SABRIL Powder for Oral Solution, Vigabatrin Powder for Oral Solution, or Vigadrone Powder for Oral Solution in the Chicago, Boston, New York City, or Miami Metro areas United States
120-minute in person interview, compensation is $360
Fragile X-Associated Tremor/Ataxia Syndrome (FXTAS) patients United States
60-minute web-assisted phone interview (WATI), compensation is $120
Gastric or Stomach Cancer patients United States
90-minute focus group, compensation is $150
Hemophilia A patients (currently using Hemlibra) and caregivers United States
60-minute in-person interview, compensation is $180
Hemophilia A & B patients and caregivers United States
2-hour web-assisted phone interview, compensation is $425
Hemophilia A or Hemophilia B patients or caregivers United States
20-minute online survey, compensation is $40
Hidradenitis Suppurativa (HS) patients or caregivers United States
20-minute online survey, compensation is $40
Hypereosinophilic Syndrome (HES) patients or caregivers United States
20-minute online survey, compensation is $40
IgA Nephropathy (Berger's Disease) patients United States
60-minute webcam interview, compensation is $125
IgA Nephropathy (Berger's Disease) patients United States
This is a 5-minute survey for medical history platform and the compensation is a $200 gift card to be paid by the client
Juvenile Idiopathic Arthritis (JIA) patients or caregivers United States
20-minute online survey, compensation is $40
Kidney Disease: Immune Complex-Mediated Membranoproliferative Glomerulonephritis (IC-MPGN, ICGN, Ig-MPGN) patients & caregivers United States United States
60-minute web-assisted phone interview, compensation is $120
Leukemia or Non-Hodgkin's Lymphoma (NHL) with Cytokine Release Syndrome patients United States
60-minute web-assisted phone interview, compensation is $150
Liver Disease: NASH or Non-Alcoholic Fatty Liver Disease (NAFLD) non-caucasian patients United States
30-minute online survey, compensation is $60
Multiple Myeloma patients and caregivers United States
60-minute web-assisted phone interview (patient) or 90-minute web-assisted phone interview (patient & caregiver), compensation is $120 (patient interview) and $180 (patient/caregiver interview)
Multiple Sclerosis: Clinically Isolated Syndrome (CIS), Relapsing Remitting MS (RRMS), Secondary Progressive MS (SPMS) patients ages 18-65 not living in Vermont United States
25-minute online survey, compensation is $50
Multiple Sclerosis patients United States
35-minute online survey, compensation is $70
Multiple Sclerosis (MS): Relapsing Remitting MS (RRMS) patients or caregivers United States
20-minute online survey, compensation is $40
Non-Small Cell Lung Cancer (NSCLC) patients and caregivers United States
60-minute web-assisted phone interview, compensation is $120
Non-Small Cell Lung Cancer (NSCLC) or Thyroid Cancer stage IV patients who have been on 2L+ of therapy United States
60-minute web-assisted phone interview, compensation is $100
Opioid Addiction patients ages 18+ United States
60-minute web-assisted phone interview, compensation is $120
Osteogenesis Imperfecta caregivers of adolescent children ages 15-17 United States
60-minute web-assisted phone interview, compensation is $75
Pemphigus Vulgaris (PV) patients or caregivers United States
20-minute online survey, compensation is $40
Phenylketonuria caregivers of adolescent children ages 12-17 United States
Online survey-up to 60 minutes, compensation is $65
Pyruvate Kinase Deficiency caregivers of patients ages 8-17 United States
60-minute web-assisted phone interview (patients answer questions, caregivers will present), compensation is $190
Rheumatoid Arthritis or Ulcerative Colitis patients United States
30-minute online survey, compensation is $50
Rhinosinusitis patients or caregivers United States
20-minute online survey, compensation is $40
Vanishing White Matter Disease caregivers United States
45-minute web-assisted phone interview plus a 15-minute pre-task assignment, compensation is $90 for the interview and $30 for the pre-task assignment
Vasculitis patients United States
60-minute online survey, compensation is $125
Vasculitis, Wegener's Granulomatosis With Polyangiitis (GPA) patients United States
120-minute focus group, compensation is $240
Wegener’s Granulomatosis With Polyangitis (GPA) patients or caregivers United States
20-minute online survey, compensation is $40
United Kingdom
Vasculitis, Wegener's Granulomatosis With Polyangiitis (GPA) patients United Kingdom
90-minute web-assisted phone interview, compensation is 90GBP
Canada
Addiction male patients Canada
90-minute web-assisted phone interview, compensation is 200 CAD
France
More studies coming soon!
Germany
More studies coming soon!
Italy
More studies coming soon!
Spain
More studies coming soon!
Australia
More studies coming soon!
New Zealand
More studies coming soon!
Participate in Patient-Centric Clinical Trials
Rare Patient Voice presents various opportunities worldwide for patients and caregivers to participate in rare disease clinical trials with a patient-centric approach.
Sign up for these clinical trial opportunities and help move science forward today.
Please contact study.inquiries@