In the Community

Rare Patient Voice likes it best when we can meet our members in person!  We are often at rare patient events. Below are a few that are coming up. If your patient group is having an event, let us know, we may want to help sponsor it, come and meet you and your fellow patients!

Date/Time Event
10:00 am - 2:00 pm
Diabetes Alert Day
Keswick Multi-Care Center, Baltimore MD
03/31/2017 - 04/02/2017
6:00 pm - 9:00 am
Coalition for Hemophilia B 11th Annual Symposium
Sawgrass Marriott Golf Resort & Spa, Ponte Vedra Beach FL
11:00 am - 3:00 pm
World of Possibilities Disabilities Expo
Radisson Hotel North Baltimore, Lutherville-Timonium MD
All Day
National Hemophilia Foundation - Colorado Chapter - Education Dayz
Denver Marriott South at Park Meadows, Lone Tree CO
04/19/2017 - 04/21/2017
All Day
World Orphan Drug Congress USA
Washington Marriott Wardman Park Hotel, Washington DC
9:00 am - 12:00 pm
Ask the Experts: Patient Education Program American Liver Foundation
Children’s Hospital Colorado, Aurora CO
04/24/2017 - 04/26/2017
All Day
PMRG Connect
Caribe Royale, Orlando FL
7:30 am - 3:30 pm
Lung Force Expo Baltimore
Martin’s West, Baltimore MD
04/29/2017 - 04/30/2017
All Day
2017 FSIG Expert Fabry Conference
Embassy Suites Cincinnati RiverCenter, Covington KY
10:00 am - 12:00 pm
MDA Muscle Walk of Baltimore
UMBC, Baltimore MD
All Day
Diabetes Greater Maryland Tour de Cure
Pearlstone Center, Reisterstown MD
All Day
JDRF TypeOne Nation Summit - Rocky Mountain 2017
University of Colorado Anschutz Medical Campus Education Buildings I and II, Aurora CO
05/20/2017 - 05/24/2017
All Day
ISPOR 22nd Annual Meeting
John B. Hynes Veterans Memorial Convention Center, Boston MA
8:30 am - 12:00 pm
Baltimore Take Steps Walk for Crohn's & Colitis
Canton Waterfront Park, Baltimore MD
5:30 pm - 8:30 pm
Huntington's Disease Team Hope Walk - Boulder
Shine Restaurant & Gathering Place, Boulder CO
10:00 am - 1:00 pm
Central New Jersey Kidney Walk
Mercer County Park, West Windsor Township NJ
06/01/2017 - 06/04/2017
All Day
No Barriers Summit
Resort at Squaw Creek, Olympic Valley CA
All Day
Parkinson Foundation Moving Day DC
National Sylvan Theater at National Monument, Washington DC
06/22/2017 - 06/24/2017
All Day
Huntington's Disease Society of America Annual Convention
Renaissance Schaumburg Hotel and Convention Center, Schaumburg IL
06/28/2017 - 07/01/2017
All Day
NAMI (National Alliance on Mental Illness) National Convention
Washington Hilton Hotel, Washington DC
07/05/2017 - 07/07/2017
All Day
Children With Diabetes Friends for Life Annual Conference
Disney’s Coronado Springs Resort, Orlando Florida
07/07/2017 - 07/08/2017
All Day
APFED Eosconnection 2017 (Eosinophilic Disorders)
Hyatt Regency Downtown, Greenville SC
08/24/2017 - 08/26/2017
All Day
National Hemophilia Foundation 69th Annual Meeting
Hyatt Regency Chicago, Chicago IL
All Day
Broncos Health Expo
Sports Authority Field at Mile High Stadium, Denver CO
7:30 am - 11:00 am
Huntington's Disease Team Hope Walk & 5K - Denver
Stapleton Central Park, Denver CO
All Day
JDRF One Walk Denver
Jefferson County Fairgrounds, Golden CO
All Day
Step Out Walk to Stop Diabetes - Baltimore
Canton Waterfront Park, Baltimore MD
All Day
JDRF One Walk Colorado Springs
Rock Ledge Ranch, Colorado Springs CO
All Day
Step Out Walk to Stop Diabetes - Frederick
Baker Park, Frederick MD