In the Community

Rare Patient Voice likes it best when we can meet our members in person!  We are often at rare patient events. Below are a few that are coming up. If your patient group is having an event, let us know, we may want to help sponsor it, come and meet you and your fellow patients!

Date/Time Event
02/27/2017
7:30 am - 4:00 pm
Rare Disease Day at NIH
Masur Auditorium, National Institutes of Health (NIH), Bethesda MD
03/04/2017
All Day
EPIC Diabetes Conference
Denver Mattiott City Center, Denver CO
03/09/2017 - 03/11/2017
All Day
AHA 6th Annual Conference
Hilton Fort Collins, Fort Collins CO
03/18/2017
All Day
B'More Healthy Expo
Baltimore Convention Center, Baltimore MD
03/25/2017
All Day
AIDS Walk South Dallas
Martin Luther King Jr. Community Center, Dallas TX
03/31/2017 - 04/02/2017
6:00 pm - 9:00 am
Coalition for Hemophilia B 11th Annual Symposium
Sawgrass Marriott Golf Resort & Spa, Ponte Vedra Beach FL
04/08/2017
11:00 am - 3:00 pm
World of Possibilies Disabilities Expo
Radisson Hotell North Baltimore, Lutherville-Timonium MD
04/19/2017 - 04/21/2017
All Day
World Orphan Drug Congress USA
Washington Marriott Wardman Park Hotel, Washington DC
04/22/2017
9:00 am - 12:00 pm
Ask the Experts: Patient Education Program American Liver Foundation
Children’s Hospital Colorado, Aurora CO
04/24/2017 - 04/26/2017
All Day
PMRG Connect
Caribe Royale, Orlando FL
04/27/2017
7:30 am - 3:30 pm
Lung Force Expo Baltimore
Martin’s West, Baltimore MD
04/29/2017
10:00 am - 12:00 pm
MDA Muscle Walk of Baltimore
UMBC, Baltimore MD
06/03/2017
All Day
Parkinson Foundation Moving Day DC
Natiional Sylvan Theater at National Monument, Washington DC
06/28/2017 - 07/01/2017
All Day
NAMI (National Alliance on Mental Illness) National Convention
Washington Hilton Hotel, Washington DC
07/07/2017 - 07/08/2017
All Day
APFED Eosconnection 2017 (Eosinophilic Disorders)
Hyatt Regency Downtown, Greenville SC
08/24/2017 - 08/26/2017
All Day
National Hemophilia Foundation 69th Annual Meeting
Hyatt Regency Chicago, Chicago IL
09/10/2017
All Day
JDRF One Walk Denver
Jefferson County Fairgrounds, Golden CO
10/07/2017
All Day
JDRF One Walk Colorado Springs
Rock Ledge Ranch, Colorado Springs CO