Our website is under construction, but we are ready to serve you!
Patients and Caregivers, if you or a loved one have a rare disease, please join our community.
•Provide your input to improve products and
•Help biopharma companies focus more on your rare disease
•Totally confidential – your name is never shared
•Free to join
•Earn rewards for participating in
interviews and surveys
•Join an online community with others who also have the same rare disease
•You’ll be invited to
participate in several surveys each year
Your opinions matter, let your voice be heard!
Sign up on the Join the Community page