Why sign up with RPV?

  • Provide your input to improve products and services.
  • Help biopharma companies focus more on your rare disease.
  • Earn rewards for participating in interviews and surveys.

What are you waiting for? Sign up now!

Providing patients and caregivers a voice

Rare Patient Voice, LLC was formed to provide patients with rare diseases and their caregivers an opportunity to voice their opinions through surveys and interviews to improve medical products and services.

Wes Michael, President and Founder of Rare Patient Voice, has been involved in rare and orphan diseases since 1998, interviewing and surveying patients, caregivers, physicians, nurses and advocacy leaders. Wes has more than 30 years experience in marketing research, and more than 15 years in healthcare marketing research.